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An Edmonds 4-year-old is redefining beauty

Inspiring little Harper Ly Foy was born with a rare skin condition, but its not holding her back. #newdaynw

SEATTLE — Harper Ly Foy of Edmonds was born with a rare genetic skin condition called Harlequin Ichthyosis. It causes thick, scaly plaques all over her body that cracks and splits apart every day. It's itchy, painful, and requires constant care. 

According to the National Organization for Rare Disorders, only about seven children are born in the U.S. with Harlequin Ichthyosis each year.

Despite it all, four-year-old Harper is on a mission to inspire people to love themselves and others just the way they are. 

Thanks to mom Angie Foy, she recently signed a two-year modelling contract with local agency TCM to spread joy and awareness.

RELATED: Comfortable in her own skin: Young model brings awareness to rare skin condition

"Beauty comes in all shapes and sizes and we want her to know she's just like everyone else," Angie said.

Harper's recent photo shoot with Seattle Children's shows off her many traits that make her bigger than her skin condition. Singing, dancing, and Seahawks are some of Harper's favorite things.

Segment Producer Joseph Suttner. Watch New Day Northwest 11 AM weekdays on KING 5 and streaming live on KING5.com. Contact New Day